Our Beneficiaries
The Children's Hospital of Philadelphia
Neurology and Endocrinology: One of the premier pediatric facilities in the United States, CHOP offers not only diagnostic services, but also follow-up care and support services. As a teaching hospital, CHOP is on the cutting edge of both research and treatment. They provide comprehensive treatment to individuals with TS not only through their Pediatric Regional Epilepsy Program, but also through coordination of care with primary physicians, support services, and administration of special programs such as the Ketogenic Diet (for patients with intractable epilepsy).
The Epilepsy FoundationŽ
The Epilepsy Foundation is the national nonprofit, voluntary organization leading the fight to ensure that children, and adults, with epilepsy participate in all life experiences. For 35 years, the Foundation has been committed to the prevention, control, and cure of epilepsy. Through research, education, advocacy, and services they strive for a positive quality of life for everyone whose life is touched by seizures. Nationwide, the Foundation's work is carried out by a network of almost 60 local Epilepsy Foundations serving 125 communities.
Tuberous Sclerosis Alliance
Founded more then 30 years ago, the TS Alliance offers services to individuals with TSC, their families, and to the health care professionals charged with their care. Their active research program engages scientists and clinicians interested in touching the thousands of lives affected by TSC. The TS Alliance boasts a nationwide network of individuals who participate by providing access to current research about TSC and its treatment, support services and groups, government advocacy for increased research funding, and outreach and awareness programs. Members of the TS Alliance staff are readily available to provide direction and assistance to efforts like Team Tamara.
